GeneSTAR Research Center - Genetic Studies of Atherosclerosis Risk
 
Prospective Collaborators and Researchers
Request for Data and Forms
PLEASE NOTE THAT THIS IS BEING REVISED. NEW DATA, CELLS, AND MATERIALS ARE AVAILABLE.

The GeneSTAR Research Program has an interest in collaborations proposed by investigators with good-standing in academic and research organizations.
 
GeneSTAR is a long-term prospective study in both African American and European American families across the adult age range. It has a wealth of baseline and follow-up data, genotyping, and substudies, focused on cardiovascular disease, cerebrovascular disease, and attendant risk factors and processes.
 
The phenotype information on the Tab to the left will assist you to know what is available. A bank of limited specimens is also also available under a materials transfer agreement (MTA) with The Johns Hopkins University. Please contact us for information about how to obtain samples.
 
All requests are considered on their scientific merit and congruence with the consenting procedure. A pre-application discussion is encouraged with the Study Directors.
 
Forms
 
Please read the Data Sharing Manual in its entirety before submitting a request for data or samples.

Prior discussion with the study investigators is strongly encouraged to better assist in choices. 
 
Click on the following for downloads that can be completed.
 
 
 
 
 
 
Proposals
 
Please contact Lisa R Yanek, Director of our Analysis Unit who will put you in touch with the correct study investigators. Lryanek@jhmi.edu.

Most of our data and cell samples are also publicly available via NIH repositories. 


 
 
  
 
dbGAP Information
 
 
Policies
Based on participant consent forms, only aggregate data are available on dbGAP. Individual level data will be available using a Limited Access Agreement which requires submission of an application and a study description to the GeneSTAR Study Steering Committee at The Johns Hopkins University. All data and all information will be fully deidentified according to our consent process.
 
To apply,
 
  • Download preliminary application form.
 
  • Complete and submit preliminary application (electronic or mail).
 
  • Provide a précis of planned data use.
 
  • Provide the Principal Investigator's curriculum vita.
 
  • Allow time for review. 
 
  • Once preliminary approval is given, then formal Limited Access Agreement application must be completed. 

Obtaining the Data
 
Provide a full list of data requested and follow the Data Sharing Manual instructions.
 
  • A full review will ensue and approval will be given in a reasonable period of time.
 
  • Data will be transferred using a File Transfer Protocol (FTP). 
 
  • Alternative measures for transfer will be considered.
 
  • Annual renewal is necessary and demonstration of progress is required to maintain the individual level data.
 
  • Once the investigation is completed, all individual level data will not be maintained in any non-Johns Hopkins site or shared with another investigator.
 
  • The source of the data is to be noted in all publications, using language available in the Data Sharing Manual.
 
  • Care must be taken to assure the most secure conditions for our research participants' data.
 
  • All data analyses performed with the data must comply with the terms of the application only and will be the sole properties of the investigators performing the analyses.
.